I battled mystery headaches for ten years – doctors thought I’d had a stroke but it was something much rarer --[Reported by Umva mag]

A MODEL with a rare brain condition says she fears never seeing her two kids grow up — as she tries to raise £26,000 for pioneering surgery abroad. Deana Hendry, 32, needs specialist treatment after being told there was nothing the NHS could do to permanently fix a malformation, which makes the back of her brain sag through the base of the skull. Chris EadesMum and model Deana Hendry, 32, has a rare brain condition and says she fears never seeing her two kids grow up — as she tries to raise £26,000 for pioneering surgery[/caption] Deana was diagnosed in 2021 after suffering symptoms for ten yearsDeana Hendry, Deana, diagnosed in 2021 after suffering symptoms for ten years, said: “Nobody knew what was causing it but I had chronic head and neck pains. “When it got really bad and I went to the hospital, at first they thought I’d had a stroke. “Then I got a phone call telling me I had an incurable brain condition.” The model, of Banbury, Oxon, was diagnosed with Arnold-Chiari malformation, which affects roughly one in 2,000. Most have no symptoms and never even realise they have it. There are four main types, but type 1, called Chiari I, is the most common and occurs when the lowest part of the back of the brain extends into the spinal canal. Many cases are triggered by part of the skull not being large enough to contain the brain. The condition is normally treated in the UK with decompression surgery, where a chunk is taken from the back of the skull to allow the brain to expand away from the spinal cord. If left untreated it can cause early-onset dementia or put too much pressure on the spinal cord, causing disability. Deana, mum to Bartholemew, four, and Isabella, two, said: “The fear of leaving them to look after me, and the fear of leaving them without me, is what’s making me find a way to get through it.” She is hoping to fund trial surgery in Barcelona, Spain, to permanently stop the malformation growing. Chris EadesDeana has been told there was nothing the NHS could do to permanently fix a malformation, which makes the back of her brain sag through the base of the skull[/caption]

Oct 14, 2024 - 20:51

I battled mystery headaches for ten years – doctors thought I’d had a stroke but it was something much rarer --[Reported by Umva mag]

A MODEL with a rare brain condition says she fears never seeing her two kids grow up — as she tries to raise £26,000 for pioneering surgery abroad.

Deana Hendry, 32, needs specialist treatment after being told there was nothing the NHS could do to permanently fix a malformation, which makes the back of her brain sag through the base of the skull.

a woman wearing a blue cardigan with white clouds on it

Mum and model Deana Hendry, 32, has a rare brain condition and says she fears never seeing her two kids grow up — as she tries to raise £26,000 for pioneering surgery[/caption]

a woman in a white suit is talking on a cell phone — Deana was diagnosed in 2021 after suffering symptoms for ten years

Deana, diagnosed in 2021 after suffering symptoms for ten years, said: “Nobody knew what was causing it but I had chronic head and neck pains.

“When it got really bad and I went to the hospital, at first they thought I’d had a stroke.

“Then I got a phone call telling me I had an incurable brain condition.”

The model, of Banbury, Oxon, was diagnosed with Arnold-Chiari malformation, which affects roughly one in 2,000.

Most have no symptoms and never even realise they have it.

There are four main types, but type 1, called Chiari I, is the most common and occurs when the lowest part of the back of the brain extends into the spinal canal.

Many cases are triggered by part of the skull not being large enough to contain the brain.

The condition is normally treated in the UK with decompression surgery, where a chunk is taken from the back of the skull to allow the brain to expand away from the spinal cord.

If left untreated it can cause early-onset dementia or put too much pressure on the spinal cord, causing disability.

Deana, mum to Bartholemew, four, and Isabella, two, said: “The fear of leaving them to look after me, and the fear of leaving them without me, is what’s making me find a way to get through it.”

She is hoping to fund trial surgery in Barcelona, Spain, to permanently stop the malformation growing.

a woman wearing a blue sweater with white clouds on the sleeves

Deana has been told there was nothing the NHS could do to permanently fix a malformation, which makes the back of her brain sag through the base of the skull[/caption]

The following news has been carefully analyzed, curated, and compiled by Umva Mag from a diverse range of people, sources, and reputable platforms. Our editorial team strives to ensure the accuracy and reliability of the information we provide. By combining insights from multiple perspectives, we aim to offer a well-rounded and comprehensive understanding of the events and stories that shape our world. Umva Mag values transparency, accountability, and journalistic integrity, ensuring that each piece of content is delivered with the utmost professionalism.

I battled mystery headaches for ten years – doctors thought I’d had a stroke but it was something much rarer --[Reported by Umva mag]

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